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Lupus Foundation of America Launches Online Lupus Support Community

The Lupus Foundation of America in partnership unveiled LupusConnect™, an online lupus community where individuals with lupus can engage with others.

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Washington, DC – The Lupus Foundation of America in partnership with Inspire, unveiled LupusConnect™, an online lupus community where individuals with lupus and their loved ones can engage with others like them to share experiences, find emotional support and discuss practical insights for coping with the challenges of the disease. LupusConnect is an easy-to-use, online platform that encourages its members to ask questions, reply to posts and read about others’ experiences in a safe and comforting community. It can be accessed 24/7 at LupusConnect.Inspire.com.

Research concluded last year by the Foundation showed that the majority of people impacted by lupus are looking for a resource to connect online with other people living with lupus. Based on this input and conversations with constituents, the Foundation partnered with Inspire to leverage its social network and build an online community that brings together people affected by lupus.

“No matter how isolated lupus can make people feel, LupusConnect offers people the opportunity to express their fears, frustrations and hopes with others who understand lupus firsthand,” said Sandra C. Raymond, Lupus Foundation of America CEO. “We are excited to partner with Inspire and to continue our commitment to providing people impacted by lupus with access to high-quality resources and support services.”

People affected by lupus can join LupusConnect at no charge and will experience a welcoming environment. Discussions cover a wide array of lupus-related topics, and include posts by members offering practical tips and resources that they have found useful for daily living with lupus. Members also have the ability to personalize their profile, follow specific posts of interest, engage in group discussions or direct messaging of members, and can add others as friends.

“In my experience, I’ve found that no matter what I’m going through with lupus, physically or emotionally, chances are that someone online has also gone through it,” said Joanna Mechlinski, who was diagnosed with lupus in 2002. “Within moments, I can connect with people who can give me advice or just empathize in a way that most healthy people can’t. With the launch of this new lupus online community, I hope to be able to make some new friends who understand what I’m going through.”


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9-year-old cancer survivor killed in tragic school bus accident

A family is in mourning after a 9-year-old cancer survivor was tragically killed in an accident in Orlando.

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9-year-old cancer survivor killed by school bus Elyas Amyr Marshall-Rodriguez
Elyas Amyr Marshall-Rodriguez (Photo Source: GoFundMe)

A family is in mourning after a 9-year-old cancer survivor was tragically killed in an accident in Orlando, Florida.

9-year-old cancer survivor tragically killed

Elyas Amyr Marshall-Rodriguez got off the bus Tuesday afternoon and, as he was walking away from the bus, he dropped his football when he crawled under the bus to get it and the vehicle began moving.

Marshall-Rodriguez was in remission for leukemia when he was killed on Tuesday after being diagnosed at 2-years-old, according to his family who spoke at his vigil.

He loved life

“He was the life of the party,” said Trenae Gayle, Marshall-Rodriguez’ cousin. “He loved football; he loved basketball. He loved all sports.”

The family has set up a GoFundMe.

The Florida Highway Patrol is investigating the incident and the investigation is currently ongoing.


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Hero teen saves baby whose parents were electrocuted by downed power line in Portland ice storm

A teenager in Oregon is being hailed a hero for putting herself in danger to help save the life of a 9-month-old baby.

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Oregon teenager saves baby
Photo by Jonathan Petersson

A teenager in Oregon is being hailed a hero for putting herself in danger to help save the life of a 9-month-old baby.

Oregon teenager saves baby

Majiah Washington, 18, of Portland, said she was inside her home on Wednesday when she saw a flash outside her window.

Washington said after looking outside, she saw a car with a downed power line on top of it, and man and a woman who had been trying to put their child in the car.

Oregon teenager saves baby Majiah Washington

Majiah Washington (Video Screenshot)

“The baby’s mom was yelling to the man, ‘Take my baby out of the car. Take my baby out of the car,'” Washington recalled at a press conference Thursday at the headquarters of Portland Fire & Rescue.

Intense rescue

Washington witnessed the infant’s father attempt to walk up an icy hill with the child, before slipping and falling backwards. The mother attempted the same, followed by another person, who all were unfortunately electrocuted.

Washington ran outside and called 911. When she saw the baby’s head move, she sprung into action. Despite what she had just witnessed and the dangers, she said she walked on the driveway to reach the baby.

Majiah Washington was heroic

Portland Fire and Rescue spokesman Rick Graves described Washington’s efforts as “heroic.”

“We do have fortunately with us a [child] that is going to be able to thrive and do what they possibly can as they move forward,” Graves said Thursday. “And they are here, in part, because of the heroic acts of a member of our community.”


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Burger King worker who went viral after receiving gift bag is now a homeowner

The Burger King worker, who went viral after showing off the flimsy gift from his employer for 27 years of service, is now a homeowner.

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Burger King worker homeowner Kevin Ford
Kevin Ford (Photo Source: GoFundMe)

The Burger King worker, who went viral after showing off the flimsy gift from his employer for 27 years of service, is now a homeowner thanks to the donations of people who were moved by his story.

Anniversary Gift bag

Back in 2022, Nevada Burger King employee Kevin Ford posted a photo of the anniversary gift bag that contained a Starbucks cup, a single movie ticket and a bag of Reese’s Pieces.His intention wasn’t to mock the bag.

“I wasn’t upset at all. I was grateful,” he said.

However, after 30 years of working and perfect attendance, the internet felt he deserved more.

When Ford’s daughter saw the video surge on social media, she started a GoFundMe page – just to raise $200 for her dad to come visit his grandchildren in Texas.

But the internet suprised them, with the fund collecting much more.

Burger King worker Kevin Ford is a homeowner

The page has now raised more than $450,000 in donations, including $5,000 from comedian David Spade.

“It’s an absolute beautiful miracle of what has happened,” Ford said to KABC.

Thanks to those donations, Ford recently moved into a new home. Of course, near his Burger King.

“When they tell you there is no hope for humanity in the world, don’t believe them… Hold me up as an example because people are beautiful,” he said.


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